Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/62017
Full metadata record
DC FieldValueLanguage
dc.contributor.authorKing, Tatianaen
dc.contributor.authorBrankovic, Ljiljanaen
dc.contributor.authorGillard, Patriciaen
dc.date.accessioned2024-08-08T01:53:19Z-
dc.date.available2024-08-08T01:53:19Z-
dc.date.issued2012-04-
dc.identifier.citationInternational journal of medical informatics, 81(4), p. 279-289en
dc.identifier.issn1872-8243en
dc.identifier.issn1386-5056en
dc.identifier.urihttps://hdl.handle.net/1959.11/62017-
dc.description.abstract<p><i>Objectives: </i> The aim of this study was to discover the public's attitude and views towards privacy in health care. This is a part of a larger project which aims to gain an insight into what kind of privacy is needed and develop technical measures to provide such privacy.</p> <p><i>Methods:</i> The study was a two-stage process which combined qualitative and quantitative research. Stage One of the study comprised arranging and facilitating focus groups while in Stage Two we conducted a social survey.</p> <p><i>Measurements: </i> We measured attitudes towards privacy, medical research and consent" privacy concern about sharing one's health information for research" privacy concern about the possibility that some specific information from medical records could be linked to the patient's name in a situation that was not related to medical treatment.</p> <p><i>Results:</i> The results of the study revealed both great support for medical research (98%), and concern about privacy of health information (66%). Participants prefer to be asked for their permission before their health information is used for any purpose other than medical treatment (92%), and they would like to know the organisation and details of the research before allowing the use of their health records (83%). Age, level of education, place of birth and employment status are most strongly associated with privacy concerns. The study showed that there are some particularly sensitive issues and there is a concern (42–60%) about any possibility of linking these kinds of data to the patient's name in a situation that is not related to medical treatment. Such issues include sexually transmitted diseases, abortions and infertility, family medical history/genetic disorders, mental illness, drug/alcohol related incidents, lists of previous operations/procedures/dates and current medications.</p> <p><i>Conclusions:</i> Participants believe they should be asked for permission before their health information is used for any purpose other than medical treatment. However, consent and privacy concerns are not necessary related.</p> <p>Assuring individuals that their personal health information is de-identified reduces their concern about the necessity of consent for releasing health information for research purposes, but many people are not aware that removing their names and other direct identifiers from medical records does not guarantee full privacy protection for their health information. Privacy concerns decrease as extra security measures are introduced to protect privacy. Therefore, instead of "tailoring concern" as proposed by Willison [1] we suggest improving privacy protection of personal information by introducing additional security measures in data publishing.</p>en
dc.languageenen
dc.publisherElsevier Ireland Ltden
dc.relation.ispartofInternational journal of medical informaticsen
dc.titlePerspectives of Australian adults about protecting the privacy of their health information in statistical databasesen
dc.typeJournal Articleen
dc.identifier.doi10.1016/j.ijmedinf.2012.01.005en
local.contributor.firstnameTatianaen
local.contributor.firstnameLjiljanaen
local.contributor.firstnamePatriciaen
local.relation.isfundedbyARCen
local.profile.schoolSchool of Science and Technologyen
local.profile.emaillbrankov@une.edu.auen
local.output.categoryC1en
local.grant.numberDP04521182en
local.record.placeauen
local.record.institutionUniversity of New Englanden
local.publisher.placeIrelanden
local.format.startpage279en
local.format.endpage289en
local.peerreviewedYesen
local.identifier.volume81en
local.identifier.issue4en
local.contributor.lastnameKingen
local.contributor.lastnameBrankovicen
local.contributor.lastnameGillarden
dc.identifier.staffune-id:lbrankoven
local.profile.orcid0000-0002-5056-4627en
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.identifier.unepublicationidune:1959.11/62017en
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
local.title.maintitlePerspectives of Australian adults about protecting the privacy of their health information in statistical databasesen
local.output.categorydescriptionC1 Refereed Article in a Scholarly Journalen
local.relation.grantdescriptionARC/DP04521182en
local.search.authorKing, Tatianaen
local.search.authorBrankovic, Ljiljanaen
local.search.authorGillard, Patriciaen
local.uneassociationNoen
local.atsiresearchNoen
local.sensitive.culturalNoen
local.year.published2012en
local.fileurl.closedpublishedhttps://rune.une.edu.au/web/retrieve/5744cffd-72a3-4671-921f-c4052451289den
local.subject.for2020460402 Data and information privacyen
local.subject.seo2020220405 Cybersecurityen
local.profile.affiliationtypeExternal Affiliationen
local.profile.affiliationtypeExternal Affiliationen
local.profile.affiliationtypeExternal Affiliationen
Appears in Collections:Journal Article
School of Science and Technology
Files in This Item:
1 files
File SizeFormat 
Show simple item record

SCOPUSTM   
Citations

73
checked on Dec 14, 2024
Google Media

Google ScholarTM

Check

Altmetric


Items in Research UNE are protected by copyright, with all rights reserved, unless otherwise indicated.