Please use this identifier to cite or link to this item:
https://hdl.handle.net/1959.11/22343
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DC Field | Value | Language |
---|---|---|
dc.contributor.author | Wark, Stuart | en |
dc.contributor.author | Hussain, Rafat | en |
dc.contributor.author | Muller, Arne | en |
dc.contributor.author | Ryan, Peta | en |
dc.contributor.author | Parmenter, Trevor | en |
dc.date.accessioned | 2018-01-17T09:27:00Z | - |
dc.date.issued | 2017 | - |
dc.identifier.citation | Journal of Applied Research in Intellectual Disabilities, 30(6), p. 1-9 | en |
dc.identifier.issn | 1468-3148 | en |
dc.identifier.issn | 1360-2322 | en |
dc.identifier.uri | https://hdl.handle.net/1959.11/22343 | - |
dc.description.abstract | Background: Increasing life expectancy for people with intellectual disability is resulting in greater need for end-of-life care services. However, limited knowledge is available regarding what barriers to accessing end-of-life care support are evident, particularly comparatively across rural and metropolitan locations. Methods: Focus group interviews were undertaken with 35 direct-care staff from four rural and two metropolitan locations. A semistructured interview guide was used, with a focus on health service access. All focus group data were independently transcribed, with thematic analysis then performed. Results: Frequency analysis identified 262 statements relating to health services access. Thematic analysis identified four key areas of 'isolation,' 'support from doctors,' 'general health support access' and 'internal staffing issues.' Conclusions: Improved access to end-of-life services is urgently required across both rural and metropolitan areas. Development of specialist training and support models for both disability and general healthcare staff may assist to reduce some identified barriers. | en |
dc.language | en | en |
dc.publisher | Wiley-Blackwell Publishing Ltd | en |
dc.relation.ispartof | Journal of Applied Research in Intellectual Disabilities | en |
dc.title | Challenges in providing end-of-life care for people with intellectual disability: Health services access | en |
dc.type | Journal Article | en |
dc.identifier.doi | 10.1111/jar.12408 | en |
dc.subject.keywords | Care for Disabled | en |
dc.subject.keywords | Health and Community Services | en |
dc.subject.keywords | Aged Health Care | en |
local.contributor.firstname | Stuart | en |
local.contributor.firstname | Rafat | en |
local.contributor.firstname | Arne | en |
local.contributor.firstname | Peta | en |
local.contributor.firstname | Trevor | en |
local.subject.for2008 | 111703 Care for Disabled | en |
local.subject.for2008 | 111708 Health and Community Services | en |
local.subject.for2008 | 111702 Aged Health Care | en |
local.subject.seo2008 | 920403 Disability and Functional Capacity | en |
local.subject.seo2008 | 920206 Health Inequalities | en |
local.subject.seo2008 | 920502 Health Related to Ageing | en |
local.profile.school | School of Rural Medicine | en |
local.profile.school | Intersect Australia | en |
local.profile.email | swark5@une.edu.au | en |
local.profile.email | pryan9@une.edu.au | en |
local.output.category | C1 | en |
local.record.place | au | en |
local.record.institution | University of New England | en |
local.identifier.epublicationsrecord | une-chute-20170830-080846 | en |
local.publisher.place | United Kingdom | en |
local.format.startpage | 1 | en |
local.format.endpage | 9 | en |
local.identifier.scopusid | 85030850343 | en |
local.peerreviewed | Yes | en |
local.identifier.volume | 30 | en |
local.identifier.issue | 6 | en |
local.title.subtitle | Health services access | en |
local.contributor.lastname | Wark | en |
local.contributor.lastname | Hussain | en |
local.contributor.lastname | Muller | en |
local.contributor.lastname | Ryan | en |
local.contributor.lastname | Parmenter | en |
dc.identifier.staff | une-id:swark5 | en |
dc.identifier.staff | une-id:pryan9 | en |
local.profile.orcid | 0000-0002-5366-1860 | en |
local.profile.orcid | 0000-0001-9476-7277 | en |
local.profile.role | author | en |
local.profile.role | author | en |
local.profile.role | author | en |
local.profile.role | author | en |
local.profile.role | author | en |
local.identifier.unepublicationid | une:22532 | en |
dc.identifier.academiclevel | Academic | en |
dc.identifier.academiclevel | Academic | en |
local.title.maintitle | Challenges in providing end-of-life care for people with intellectual disability | en |
local.output.categorydescription | C1 Refereed Article in a Scholarly Journal | en |
local.search.author | Wark, Stuart | en |
local.search.author | Hussain, Rafat | en |
local.search.author | Muller, Arne | en |
local.search.author | Ryan, Peta | en |
local.search.author | Parmenter, Trevor | en |
local.uneassociation | Unknown | en |
local.identifier.wosid | 000417826100016 | en |
local.year.published | 2017 | en |
local.fileurl.closedpublished | https://rune.une.edu.au/web/retrieve/f702f941-77b2-418f-91b8-a9b19628ea3a | en |
local.subject.for2020 | 420305 Health and community services | en |
local.subject.for2020 | 420301 Aged health care | en |
local.subject.seo2020 | 200403 Disability and functional capacity | en |
local.subject.seo2020 | 200204 Health inequalities | en |
local.subject.seo2020 | 200502 Health related to ageing | en |
dc.notification.token | f961207a-372c-4aac-b0fc-235cf8479ae0 | en |
Appears in Collections: | Journal Article School of Rural Medicine |
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