Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/21729
Full metadata record
DC FieldValueLanguage
dc.contributor.authorWark, Stuarten
dc.contributor.authorMacPhail, Catherineen
dc.contributor.authorMcKay, Kathyen
dc.contributor.authorMuller, Arneen
dc.date.accessioned2017-08-22T13:41:00Z
dc.date.issued2017en
dc.identifier.citationAustralian Health Review, 41(4), p. 436-442en
dc.identifier.issn0156-5788en
dc.identifier.issn1449-8944en
dc.identifier.urihttps://hdl.handle.net/1959.11/21729en
dc.description.abstractObjective: The aim of the present study was to explore the use of complementary consent methodologies to support a potentially vulnerable group of people, namely those aging with intellectual disability, to provide personal input. It was premised on the view that processes to determine capacity for consent, appropriately modified to account for individual capabilities and current circumstances, could facilitate meaningful participation in the development of personal health care plans of people previously excluded from contributing. Methods: The present descriptive case study research was undertaken in New South Wales, Australia. A seven-step process for determining capacity for consent was developed, and 10 participants aged between 54 and 73 years with lifelong intellectual disability and health comorbidities were involved. A variety of assistive communication tools was used to support individuals to demonstrate their capacity for giving informed consent. Results: After being provided with tailored support mechanisms, seven participants were considered to meet all seven components for determining capacity for consent. Three participants were deemed not to have capacity to give consent regardless of the type of support provided. Conclusions: Three critical factors for facilitating personal involvement in decision making for individuals with an intellectual disability were identified: (1) defining consent specifically for the target outcome; (2) outlining the criteria needed for consent to be obtained; and (3) using appropriately modified alternative communication mechanisms as necessary.en
dc.languageenen
dc.publisherCSIRO Publishingen
dc.relation.ispartofAustralian Health Reviewen
dc.titleInformed consent in a vulnerable population group: supporting individuals aging with intellectual disability to participate in developing their own health and support programsen
dc.typeJournal Articleen
dc.identifier.doi10.1071/ah15235en
dc.subject.keywordsAged Health Careen
dc.subject.keywordsCare for Disableden
dc.subject.keywordsPublic Health and Health Servicesen
local.contributor.firstnameStuarten
local.contributor.firstnameCatherineen
local.contributor.firstnameKathyen
local.contributor.firstnameArneen
local.subject.for2008111799 Public Health and Health Services not elsewhere classifieden
local.subject.for2008111702 Aged Health Careen
local.subject.for2008111703 Care for Disableden
local.subject.seo2008920502 Health Related to Ageingen
local.subject.seo2008920506 Rural Healthen
local.subject.seo2008920403 Disability and Functional Capacityen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.emailswark5@une.edu.auen
local.profile.emailcmacphai@une.edu.auen
local.profile.emailkmckay8@une.edu.auen
local.output.categoryC1en
local.record.placeauen
local.record.institutionUniversity of New Englanden
local.identifier.epublicationsrecordune-20160825-083137en
local.publisher.placeAustraliaen
local.format.startpage436en
local.format.endpage442en
local.peerreviewedYesen
local.identifier.volume41en
local.identifier.issue4en
local.title.subtitlesupporting individuals aging with intellectual disability to participate in developing their own health and support programsen
local.contributor.lastnameWarken
local.contributor.lastnameMacPhailen
local.contributor.lastnameMcKayen
local.contributor.lastnameMulleren
dc.identifier.staffune-id:swark5en
dc.identifier.staffune-id:cmacphaien
dc.identifier.staffune-id:kmckay8en
dc.identifier.staffune-id:amuelle3en
local.profile.orcid0000-0002-5366-1860en
local.profile.orcid0000-0002-0614-0157en
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.identifier.unepublicationidune:21920en
local.identifier.handlehttps://hdl.handle.net/1959.11/21729en
dc.identifier.academiclevelAcademicen
local.title.maintitleInformed consent in a vulnerable population groupen
local.output.categorydescriptionC1 Refereed Article in a Scholarly Journalen
local.description.statisticsepubsVisitors: 24<br />Views: 54<br />Downloads: 2en
Appears in Collections:Journal Article
School of Rural Medicine
Files in This Item:
2 files
File Description SizeFormat 
Show simple item record

SCOPUSTM   
Citations

2
checked on Nov 30, 2018

Page view(s)

238
checked on May 2, 2019
Google Media

Google ScholarTM

Check

Altmetric


Items in Research UNE are protected by copyright, with all rights reserved, unless otherwise indicated.