Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/19417
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dc.contributor.authorBowles, Joyen
dc.contributor.authorHussain, Rafaten
dc.contributor.authorWark, Stuarten
dc.contributor.authorJanicki, Matthewen
local.source.editorEditor(s): Chris Oliveren
dc.date.accessioned2016-08-22T16:00:00Z-
dc.date.issued2016-
dc.identifier.citationJournal of Intellectual Disability Research, 60(7-8), p. 642-642en
dc.identifier.issn1365-2788en
dc.identifier.issn0964-2633en
dc.identifier.urihttps://hdl.handle.net/1959.11/19417-
dc.description.abstractAim: To determine the feasibility and costs of supporting rural people aging with intellectual disabilities (ID) to complete validated survey tools. Method: Community-based organisations in rural New South Wales identified eligible survey participants, defined as people aged over 59 living in the community either with or without life-long ID. Tools included SF12, Duke Social Support Index (DSSI) and Cummins' Personal Wellbeing Index. Online and paper-based surveys were completed by the mainstream cohort. A pilot indicated participation by people with ID was only feasible through 1:1 interviews due to language complexity in some tools. Results: Researchers surveyed 70 people with ID from 12 geographically diverse towns, with 164 age-peer surveys independently completed. Costs of survey administration were calculated for each mode. Excluding researcher salaries, the average cost of collecting the rural ID cohort was $101.33 and $11.96 for age-peer paper surveys. Conclusions: Supporting the inclusion of rural people aging with ID in research using validated survey tools is both feasible and desirable. Recommendations include that projects consider the cost and methodological impacts of each mode during design.en
dc.languageenen
dc.publisherWiley-Blackwell Publishing Ltden
dc.relation.ispartofJournal of Intellectual Disability Researchen
dc.titleSupporting participation: Facilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey toolsen
dc.typeConference Publicationen
dc.relation.conferenceIASSIDD 2016: 15th World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilitiesen
dc.subject.keywordsCare for Disableden
dc.subject.keywordsAged Health Careen
dc.subject.keywordsHealth and Community Servicesen
local.contributor.firstnameJoyen
local.contributor.firstnameRafaten
local.contributor.firstnameStuarten
local.contributor.firstnameMatthewen
local.subject.for2008111702 Aged Health Careen
local.subject.for2008111708 Health and Community Servicesen
local.subject.for2008111703 Care for Disableden
local.subject.seo2008920502 Health Related to Ageingen
local.subject.seo2008920403 Disability and Functional Capacityen
local.subject.seo2008920206 Health Inequalitiesen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.emailebowles@une.edu.auen
local.profile.emailrhussain@une.edu.auen
local.profile.emailswark5@une.edu.auen
local.profile.emailmjanicki@une.edu.auen
local.output.categoryE3en
local.record.placeauen
local.record.institutionUniversity of New Englanden
local.identifier.epublicationsrecordune-20160822-14277en
local.date.conference15th - 19th August, 2016en
local.conference.placeMelbourne, Australiaen
local.publisher.placeUnited Kingdomen
local.format.startpage642en
local.format.endpage642en
local.identifier.volume60en
local.identifier.issue7-8en
local.title.subtitleFacilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey toolsen
local.contributor.lastnameBowlesen
local.contributor.lastnameHussainen
local.contributor.lastnameWarken
local.contributor.lastnameJanickien
dc.identifier.staffune-id:ebowlesen
dc.identifier.staffune-id:rhussainen
dc.identifier.staffune-id:swark5en
dc.identifier.staffune-id:mjanickien
local.profile.orcid0000-0001-5342-9191en
local.profile.orcid0000-0002-5366-1860en
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.identifier.unepublicationidune:19612en
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
local.title.maintitleSupporting participationen
local.output.categorydescriptionE3 Extract of Scholarly Conference Publicationen
local.relation.grantdescriptionARC/130100168en
local.relation.doi10.1111/jir.12305en
local.conference.detailsIASSIDD 2016: 15th World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Melbourne, Australia, 15th - 19th August, 2016en
local.search.authorBowles, Joyen
local.search.authorHussain, Rafaten
local.search.authorWark, Stuarten
local.search.authorJanicki, Matthewen
local.uneassociationUnknownen
local.year.published2016en
local.subject.for2020420301 Aged health careen
local.subject.for2020420305 Health and community servicesen
local.subject.for2020420318 People with disabilityen
local.subject.seo2020200502 Health related to ageingen
local.subject.seo2020200403 Disability and functional capacityen
local.subject.seo2020200204 Health inequalitiesen
local.date.start2016-08-15-
local.date.end2016-08-19-
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School of Rural Medicine
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