Wisemantel, Melinda

Maple, Myfanwy

Massey, Peter D

Osbourn, Maggi

Kohlhagen, Julie

2018

Invasive Meningococcal Disease (IMD) is an uncommon but potentially severe illness that disproportionally affects babies, children, and adolescents and can cause significant disability. Such outcomes have devastating impact on families and caregivers. This study aimed to identify the current level of social work intervention in cases of IMD, identify how psychosocial needs are met during an IMD admission; and identify the opportunities for social workers to support and meet the needs of patients, families, and carers during an IMD admission and beyond. A mixed methods approach was employed including: a medical record review of IMD cases; semistructured interviews with families who had experienced a child or young person with an IMD diagnosis; and a structured interview with a key informant to explore the potential social work role. The results from this small study indicate that the psychosocial needs of family members may not be being adequately met, highlighting an opportunity for social workers to provide holistic assessment and support including crisis intervention, advocacy, and anticipatory guidance to those experiencing IMD and their families.

Australian Social Work, 71(4), p. 478-490

1447-0748

0312-407X

https://hdl.handle.net/1959.11/30266

en

Routledge

Psychosocial Challenges of Invasive Meningococcal Disease for Children and their Families

Journal Article

Publication