Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/29840
Title: Carers' Motivations for, and Experiences of, Participating in Suicide Research
Contributor(s): Maple, Myfanwy  (author)orcid ; Wayland, Sarah  (author)orcid ; Sanford, Rebecca (author); Spillane, Ailbhe (author); Coker, Sarah (author)
Publication Date: 2020-03-06
Open Access: Yes
DOI: 10.3390/ijerph17051733
Handle Link: https://hdl.handle.net/1959.11/29840
Abstract: (1) Background: First-hand accounts of lived experience of suicide remain rare in the research literature. Increasing interest in the lived experience of suicide is resulting in more opportunities for people to participate in research based on their personal experience. How individuals choose to participate in research, and their experience of doing so, are important considerations in the ethical conduct of research. (2) Methods: To understand the experience of providing care for someone who has previously attempted suicide, a cross-sectional online community survey was conducted. This survey concluded with questions regarding motivation to participate and the experience of doing so. Of the 758 individuals who participated in the survey, 545 provided open-ended text responses to questions regarding motivation and 523 did so for questions regarding the experience of participating. It is these responses that are the focus of this paper. Data were analysed thematically. (3) Results: Motivations to participate were expressed as primarily altruistic in nature, with a future focus on improving the experience of the person who had attempted suicide alongside carers to ease distress. The experience of participating was difficult yet manageable, for all but a few participants. (4) Conclusions: With the increasing interest in first-hand accounts of suicide, how individuals experience participation in research is an important focus that requires further attention.
Publication Type: Journal Article
Source of Publication: International Journal of Environmental Research and Public Health, 17(5), p. 1-15
Publisher: MDPI AG
Place of Publication: Switzerland
ISSN: 1660-4601
1661-7827
Fields of Research (FoR) 2008: 119999 Medical and Health Sciences not elsewhere classified
111714 Mental Health
Fields of Research (FoR) 2020: 520302 Clinical psychology
Socio-Economic Objective (SEO) 2008: 920209 Mental Health Services
Socio-Economic Objective (SEO) 2020: 200305 Mental health services
Peer Reviewed: Yes
HERDC Category Description: C1 Refereed Article in a Scholarly Journal
Appears in Collections:Journal Article
School of Health

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