Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/29262
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dc.contributor.authorTait, Kathleenen
dc.contributor.authorHussain, Rafaten
dc.contributor.authorWark, Stuarten
dc.contributor.authorFung, Francisen
dc.date.accessioned2020-08-19T04:41:45Z-
dc.date.available2020-08-19T04:41:45Z-
dc.date.issued2020-09-
dc.identifier.citationBritish Journal of Learning Disabilities, 48(3), p. 206-215en
dc.identifier.issn1468-3156en
dc.identifier.issn1354-4187en
dc.identifier.urihttps://hdl.handle.net/1959.11/29262-
dc.description.abstract1.1 Background<br>This study investigated perceived quality of life (QoL) of community‐dwelling middle‐aged adults (30-50 years) with an intellectual disability and/or developmental disability living in rural or urban areas in New South Wales and Queensland, Australia. The specific aim of the current paper was to provide a descriptive evidence base of QoL and its specific domains by various key demographic characteristics of middle‐aged individuals. This cohort is likely to have either experienced or reached adulthood during and after large‐scale deinstitutionalisation in Australia.<br>1.2 Methods and procedures<br>A cross‐sectional design was utilised, based on the QoL‐Q survey, testing domains of satisfaction; Competence/Productivity; Empowerment/Independence; and social belonging/community integration. The survey included demographic questions and was distributed to participants through disability support agencies across two states. The final sample included 291 respondents.<br>1.3 Results<br>The overall QoL‐Q scores ranged from 3.0 to 29.5 (Mean = 20.4, <i>SD</i> , 4.1), with considerable variation in mean scores both across and within domains. The two demographic areas that showed greatest predictive value for QoL were work status and accommodation issues. The loss of agency and control in choice of co‐residents influenced perceived QoL for empowerment and independence domain of QoL‐Q.<br>1.4 Conclusions<br>The findings highlight QoL issues associated with policy decisions and support programmes for middle‐aged adults. The two key recommendations arising from the project are that future planning for post‐retirement or reduced working hours needs to commence at a much younger age than currently expected, and more attention needs to focus on facilitating individual decision‐making and choice within shared accommodation options.en
dc.languageenen
dc.publisherWiley-Blackwell Publishing Ltden
dc.relation.ispartofBritish Journal of Learning Disabilitiesen
dc.titleGrowing older with lifelong disability: What is "quality of life" in the middle years?en
dc.typeJournal Articleen
dc.identifier.doi10.1111/bld.12332en
local.contributor.firstnameKathleenen
local.contributor.firstnameRafaten
local.contributor.firstnameStuarten
local.contributor.firstnameFrancisen
local.subject.for2008111703 Care for Disableden
local.subject.for2008111702 Aged Health Careen
local.subject.for2008111708 Health and Community Servicesen
local.subject.seo2008920403 Disability and Functional Capacityen
local.subject.seo2008920506 Rural Healthen
local.subject.seo2008920502 Health Related to Ageingen
local.profile.schoolAdministrationen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.emailktait2@une.edu.auen
local.profile.emailrhussain@une.edu.auen
local.profile.emailstuart.wark@une.edu.auen
local.output.categoryC1en
local.record.placeauen
local.record.institutionUniversity of New Englanden
local.publisher.placeUnited Kingdomen
local.format.startpage206en
local.format.endpage215en
local.peerreviewedYesen
local.identifier.volume48en
local.identifier.issue3en
local.title.subtitleWhat is "quality of life" in the middle years?en
local.contributor.lastnameTaiten
local.contributor.lastnameHussainen
local.contributor.lastnameWarken
local.contributor.lastnameFungen
dc.identifier.staffune-id:ktait2en
dc.identifier.staffune-id:rhussainen
dc.identifier.staffune-id:swark5en
local.profile.orcid0000-0002-5366-1860en
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.identifier.unepublicationidune:1959.11/29262en
local.date.onlineversion2020-06-07-
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
local.title.maintitleGrowing older with lifelong disabilityen
local.relation.fundingsourcenoteUniversity of New England; Macquarie University Special Education Research Centreen
local.output.categorydescriptionC1 Refereed Article in a Scholarly Journalen
local.search.authorTait, Kathleenen
local.search.authorHussain, Rafaten
local.search.authorWark, Stuarten
local.search.authorFung, Francisen
local.identifier.erajournal8342en
local.uneassociationYesen
local.atsiresearchNoen
local.sensitive.culturalNoen
local.year.available2020en
local.year.published2020en
local.fileurl.closedpublishedhttps://rune.une.edu.au/web/retrieve/0626af4f-b228-4e77-b9db-9c33433a255cen
Appears in Collections:Journal Article
School of Rural Medicine
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