Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/28655
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dc.contributor.authorWark, Stuarten
dc.contributor.authorHussain, Rafaten
dc.contributor.authorMuller, Arneen
dc.contributor.authorParmenter, Trevoren
dc.date.accessioned2020-05-06T05:24:26Z-
dc.date.available2020-05-06T05:24:26Z-
dc.date.issued2019-
dc.identifier.citationThe journey to a good life: Taking control, p. 1-22en
dc.identifier.otherhttp://www.asidconference.com.au/2019-proceedingsen
dc.identifier.otherhttp://www.asidconference.com.au/2322en
dc.identifier.urihttps://hdl.handle.net/1959.11/28655-
dc.description.abstractBackground Life expectancy for persons with intellectual disability has increased dramatically over the past decade, which has seen an associated rise in the need for end-of-life care. However, limited knowledge is available regarding the barriers to accessing necessary end-of- life care support, particularly in rural locations in Australia. <br> Method Focus group interviews were undertaken with disability support workers from four rural locations in NSW and Queensland. A semi-structured interview guide was used, with a focus on gaining an understanding of the barriers and impediments to providing appropriate and timely end-of-life care for individuals with intellectual disability. All focus group data were independently transcribed, with thematic analysis then performed. <br> Results The thematic analysis identified eleven key thematic areas under three over-arching levels; Government, including community infrastructure failings and inaccessible generic health services access, Organisation, which included internal policy & practice restrictions and poor staff training, and Individual, such as religious beliefs, personal relationships and end-of-life expectations. <br> Implications It is already known that access to services is often poor for rural residents. However, these findings indicated that rural people with intellectual disability are further restricted in their ability to access generic and specialist services during their end-of-life. Exemplars including the lack of counselling support, and access to appropriate residential options. Improved access to end-of- life services is urgently required in rural areas, with a need to consider implementing innovative care models. Development of specialist training and support models for both disability and general healthcare staff may assist to reduce some identified barriers.en
dc.languageenen
dc.publisherAustralasian Society for Intellectual Disabilityen
dc.relation.ispartofThe journey to a good life: Taking controlen
dc.titleBarriers and impediments to providing end-of-life care in rural Australiaen
dc.typeConference Publicationen
dc.relation.conferenceThe 53rd Australian Society for Intellectual Disability (ASID) Conferenceen
local.contributor.firstnameStuarten
local.contributor.firstnameRafaten
local.contributor.firstnameArneen
local.contributor.firstnameTrevoren
local.subject.for2008111703 Care for Disableden
local.subject.for2008111702 Aged Health Careen
local.subject.for2008111708 Health and Community Servicesen
local.subject.seo2008920403 Disability and Functional Capacityen
local.subject.seo2008920211 Palliative Careen
local.subject.seo2008920506 Rural Healthen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.schoolSchool of Rural Medicineen
local.profile.emailstuart.wark@une.edu.auen
local.profile.emailrhussain@une.edu.auen
local.profile.emailtparment@une.edu.auen
local.output.categoryE3en
local.record.placeauen
local.record.institutionUniversity of New Englanden
local.date.conference6th - 8th November, 2019en
local.conference.placeAdelaide, Australiaen
local.publisher.placeHobart, Australiaen
local.format.startpage1en
local.format.endpage22en
local.contributor.lastnameWarken
local.contributor.lastnameHussainen
local.contributor.lastnameMulleren
local.contributor.lastnameParmenteren
dc.identifier.staffune-id:swark5en
dc.identifier.staffune-id:rhussainen
dc.identifier.staffune-id:tparmenten
local.profile.orcid0000-0002-5366-1860en
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.profile.roleauthoren
local.identifier.unepublicationidune:1959.11/28655en
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
dc.identifier.academiclevelAcademicen
local.title.maintitleBarriers and impediments to providing end-of-life care in rural Australiaen
local.output.categorydescriptionE3 Extract of Scholarly Conference Publicationen
local.conference.detailsThe 53rd Australian Society for Intellectual Disability Conference, Adelaide, Australia, 6-8 November, 2019en
local.search.authorWark, Stuarten
local.search.authorHussain, Rafaten
local.search.authorMuller, Arneen
local.search.authorParmenter, Trevoren
local.istranslatedNoen
local.uneassociationYesen
dc.date.presented2019-11-07-
local.atsiresearchNoen
local.conference.venueHilton Adelaideen
local.sensitive.culturalNoen
local.year.published2019en
local.year.presented2019en
local.fileurl.closedpublishedhttps://rune.une.edu.au/web/retrieve/095f479b-6a55-44a4-a307-6b5707c36f4fen
Appears in Collections:Conference Publication
School of Rural Medicine
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