Supporting end-of-life care across geographic diversity: What works and what needs to change?

Title
Supporting end-of-life care across geographic diversity: What works and what needs to change?
Publication Date
2016
Author(s)
Wark, Stuart
( author )
OrcID: https://orcid.org/0000-0002-5366-1860
Email: swark5@une.edu.au
UNE Id une-id:swark5
Ryan, Peta
( author )
OrcID: https://orcid.org/0000-0001-9476-7277
Email: pryan9@une.edu.au
UNE Id une-id:pryan9
Parmenter, Trevor
Hussain, Rafat
Editor
Editor(s): Chris Oliver
Type of document
Conference Publication
Language
en
Entity Type
Publication
Publisher
Wiley-Blackwell Publishing Ltd
Place of publication
United Kingdom
UNE publication id
une:19615
Abstract
Aim: There is an emerging need for end-of-life care for people with intellectual disabilities; however, there is limited research that concurrently examines support issues within both rural and metropolitan localities. The aim of the current study was to gain insights from paid carers in both city and country areas of Australia in order to identify facilitators and barriers to the provision of appropriate end-of-life care support. Method: Seven focus groups with a total of 35 participants were conducted in metropolitan (Sydney and Brisbane) and rural (Armidale, Inverell, Lismore and Warwick) locations using a semi-structured interview guide. All focus group data were independently transcribed, and thematic analysis was undertaken. Results: There were seven main themes recognised in the data. These were Training and Staff Support; Health Services; Relationships; Policy and Practice Barriers; Pain and Medication Management; Quality of Life; and Infrastructure. Similarities and differences based upon geographic location were identified. Conclusion: The differing end-of-life needs of rural and metropolitan residents are nominated. Specific recommendations are made for Australian-based services regarding changes to daily practice that better support people during their end-of-life.
Link
Citation
Journal of Intellectual Disability Research, 60(7-8), p. 760-760
ISSN
1365-2788
0964-2633
Start page
760
End page
760

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