Supporting participation: Facilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey tools

Title
Supporting participation: Facilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey tools
Publication Date
2016
Author(s)
Bowles, Joy
( author )
OrcID: https://orcid.org/0000-0001-5342-9191
Email: ebowles@une.edu.au
UNE Id une-id:ebowles
Hussain, Rafat
Wark, Stuart
( author )
OrcID: https://orcid.org/0000-0002-5366-1860
Email: swark5@une.edu.au
UNE Id une-id:swark5
Janicki, Matthew
Editor
Editor(s): Chris Oliver
Type of document
Conference Publication
Language
en
Entity Type
Publication
Publisher
Wiley-Blackwell Publishing Ltd
Place of publication
United Kingdom
UNE publication id
une:19612
Abstract
Aim: To determine the feasibility and costs of supporting rural people aging with intellectual disabilities (ID) to complete validated survey tools. Method: Community-based organisations in rural New South Wales identified eligible survey participants, defined as people aged over 59 living in the community either with or without life-long ID. Tools included SF12, Duke Social Support Index (DSSI) and Cummins' Personal Wellbeing Index. Online and paper-based surveys were completed by the mainstream cohort. A pilot indicated participation by people with ID was only feasible through 1:1 interviews due to language complexity in some tools. Results: Researchers surveyed 70 people with ID from 12 geographically diverse towns, with 164 age-peer surveys independently completed. Costs of survey administration were calculated for each mode. Excluding researcher salaries, the average cost of collecting the rural ID cohort was $101.33 and $11.96 for age-peer paper surveys. Conclusions: Supporting the inclusion of rural people aging with ID in research using validated survey tools is both feasible and desirable. Recommendations include that projects consider the cost and methodological impacts of each mode during design.
Link
Citation
Journal of Intellectual Disability Research, 60(7-8), p. 642-642
ISSN
1365-2788
0964-2633
Start page
642
End page
642

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