Please use this identifier to cite or link to this item: https://hdl.handle.net/1959.11/19417
Title: Supporting participation: Facilitating inclusion of rural Australians aging with intellectual disabilities in research using validated survey tools
Contributor(s): Bowles, Joy  (author)orcid ; Hussain, Rafat  (author); Wark, Stuart  (author)orcid ; Janicki, Matthew  (author)
Publication Date: 2016
Handle Link: https://hdl.handle.net/1959.11/19417
Related DOI: 10.1111/jir.12305
Abstract: Aim: To determine the feasibility and costs of supporting rural people aging with intellectual disabilities (ID) to complete validated survey tools. Method: Community-based organisations in rural New South Wales identified eligible survey participants, defined as people aged over 59 living in the community either with or without life-long ID. Tools included SF12, Duke Social Support Index (DSSI) and Cummins' Personal Wellbeing Index. Online and paper-based surveys were completed by the mainstream cohort. A pilot indicated participation by people with ID was only feasible through 1:1 interviews due to language complexity in some tools. Results: Researchers surveyed 70 people with ID from 12 geographically diverse towns, with 164 age-peer surveys independently completed. Costs of survey administration were calculated for each mode. Excluding researcher salaries, the average cost of collecting the rural ID cohort was $101.33 and $11.96 for age-peer paper surveys. Conclusions: Supporting the inclusion of rural people aging with ID in research using validated survey tools is both feasible and desirable. Recommendations include that projects consider the cost and methodological impacts of each mode during design.
Publication Type: Conference Publication
Conference Details: IASSIDD 2016: 15th World Congress of the International Association for the Scientific Study of Intellectual and Developmental Disabilities, Melbourne, Australia, 15th - 19th August, 2016
Grant Details: ARC/130100168
Source of Publication: Journal of Intellectual Disability Research, 60(7-8), p. 642-642
Publisher: Wiley-Blackwell Publishing Ltd
Place of Publication: United Kingdom
ISSN: 1365-2788
0964-2633
Fields of Research (FoR) 2008: 111702 Aged Health Care
111708 Health and Community Services
111703 Care for Disabled
Fields of Research (FoR) 2020: 420301 Aged health care
420305 Health and community services
420318 People with disability
Socio-Economic Objective (SEO) 2008: 920502 Health Related to Ageing
920403 Disability and Functional Capacity
920206 Health Inequalities
Socio-Economic Objective (SEO) 2020: 200502 Health related to ageing
200403 Disability and functional capacity
200204 Health inequalities
HERDC Category Description: E3 Extract of Scholarly Conference Publication
Appears in Collections:Conference Publication
School of Rural Medicine

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