Experiences of Australians Living With Parkinson’s Disease

Title
Experiences of Australians Living With Parkinson’s Disease
Publication Date
2026-01
Author(s)
Messing, Alycia
Bartik, Warren
( author )
OrcID: https://orcid.org/0000-0001-8344-3306
Email: wbartik@une.edu.au
UNE Id une-id:wbartik
Hobbs, Megan J
( author )
OrcID: https://orcid.org/0000-0003-0131-0089
Email: mhobbs8@une.edu.au
UNE Id une-id:mhobbs8
Apthorp, Deborah
( author )
OrcID: https://orcid.org/0000-0001-5785-024X
Email: dapthorp@une.edu.au
UNE Id une-id:dapthorp
Type of document
Awaiting Review
Language
en
Entity Type
Publication
Publisher
John Wiley & Sons Ltd
Place of publication
United Kingdom
DOI
10.1155/padi/2661657
UNE publication id
une:1959.11/72225
Abstract

This study explores the healthcare experiences of Australians with Parkinson’s disease, focusing on healthcare access, symptom management and support networks. Despite the body of research on the experiences of PwPD, there is limited understanding of the specific challenges faced by Australians in accessing and navigating healthcare services. A national survey was conducted, and free-text responses to an optional open-ended question were analysed using thematic analysis to identify key themes in healthcare experiences and barriers. Seven themes were identified: Navigating Healthcare, Diagnostic Experiences, Symptom Experience and Management, Optimism and Resilience, Knowledge and Understanding of Parkinson’s Disease, Necessitated Self-Advocacy, and Community-Driven Support. Participants reported difficulties in obtaining timely diagnoses, navigating healthcare services and accessing specialised care. Information gaps and inadequate patient–provider communication were also noted. Peer support networks were highlighted as crucial for coping and resilience, with a notable shift away from traditional familial support structures. Findings underscore systemic challenges in healthcare access and communication for Australian PwPD and suggest that enhancing peer support networks and improving care pathways could strengthen disease management and support.

Link
Citation
Parkinson's Disease, 2026(1), p. 1-10
ISSN
2042-0080
2090-8083
Start page
1
End page
10
Rights
Attribution 4.0 International

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