|
This dataset comprises responses from a national cross-sectional survey of Australian adults diagnosed with Parkinson's disease (PD). The survey collected demographic information, disease characteristics (including self-reported Hoehn and Yahr staging), treatment utilisation and preferences, satisfaction with healthcare services, health-related quality of life (HRQoL) as measured by the Parkinson's Disease Questionnaire (PDQ-39), and free-text responses to an optional open-ended question regarding healthcare experiences. Respondents were classified by geographic location (regional or major city) using standard Australian remoteness classifications. The final sample included 87 respondents from six Australian states. The data were used to examine regional differences in diagnosis, service access, and HRQoL (Paper 1: Messing, Hobbs, Quirk, & Apthorp, 2025, Australian Journal of Rural Health), and to explore the lived healthcare experiences of Australians with PD through thematic analysis of qualitative responses (Paper 2: Messing, Bartik, Hobbs, & Apthorp, 2026, Parkinson's Disease). |
|